Dundee and St Andrews researchers develop a communication support system for older people with dementia

As one result of their collaborative work over twelve years, a multidisciplinary team from Dundee and St Andrews Universities has produced CIRCA, a system which  takes over the job of prompting and supporting the communication of a person with dementia and restores an ability to have satisfying interactions with relatives, friends and carers.  CIRCA gives the person with dementia and their conversation partner touchscreen access to a hypermedia structure holding a large collection of reminiscence content : photos, film clips, and music.

In a session with CIRCA, the person with dementia and a carer or relative enjoy exploring the material together via the touchscreen, and the person with dementia has their long-term memory occasionally prompted by what they are experiencing.  In dementia, although working (short-term) memory can be severely compromised, long-term memories can be relatively intact.

Norman Alm, of the development team, said  “We had hoped to develop a system that supported an effortless reminiscence session.  CIRCA certainly met that goal.  However, two of our findings were quite unexpected.  With CIRCA we observed people with dementia being able to take more control of the direction of the conversation, because of the touchscreen access to an easily understood structure, and also because of the way we organised the material with multiple ways of moving through it, modelling what happens when we have a natural conversation. We also found that, for people with dementia, a rich collection of carefully selected  generic material can prompt personal recollections actually better than personal material.”

Dundee and St Andrews Universities have set up a spinout company called  CIRCA Connect to bring CIRCA to the market, and make it available to the people who need it.

More information is available at :

www.computing.dundee.ac.uk/projects/circa
www.circaconnect.co.uk

P4 Digital : The Future of Healthcare – 10th/11th May 2011

After the success of the P4 Digital Healthcare convention in 2010, Highlands and Islands Enterprise offers the opportunity to further explore the rapidly evolving field of P4 digital healthcare.

The term ‘P4’ is being adopted in the life sciences and digital healthcare sectors to describe the changing healthcare landscape as it becomes more Predictive, Preventative, Personalised and Participatory.

P4 Digital: The future of healthcare conference, taking place at the Centre for Health Science in Inverness, will be held on 10 and 11 May 2011.  The theme of the event will be ‘exploring and connecting’.

Conference agenda

  • Day 1, 10th May 2011
  • 12.00pm – 1.00pm registration and lunch
  • 1.00pm – 1.10pm introduction and welcome
  • 1.10pm – 1.30pm scene setting – Dr Steven Dodsworth, Highlands and Islands Enterprise
  • 1.30pm – 2.10pm P4 Digital and m-health – Sarah Sanders, Vodafone
  • 2.10pm – 2.50pm P4 Digital, sensors and devices – Steve Setford, LifeScan
  • 2.50pm – 3.50pm coffee and exhibition
  • 3.50pm – 4.30pm P4 Digital and the web – Dame Wendy Hall, Web Science Trust*
  • 4.30pm – 5.00pm Moray, a living laboratory – Moray Community Health and Social Care Partnership
  • 5.00pm – 5.10pm closing remarks

* Remote connection

  • Day 2, 11th May 2011
  • 8.45am – 9.15am registration and coffee
  • 9.15am – 9.30am opening remarks
  • 9.30am – 10.10am P4 Digital and the NHS – George Crooks, NHS 24
  • 10.10am – 10.50am P4 and consumer health psychology – Vivien Swanson, University of Stirling
  • 10.50am – 11.30am coffee and exhibition
  • 11.30am – 12.20pm P4 and design innovation – Irene McAra-McWilliam, Glasgow School of Art
  • 12.20pm – 1.00pm P4 Digital in practice
  • 1.00pm – 1.10pm closing remarks
  • Lunch and networking

Delegate sign-up –  please complete our online form here to sign up for this event

Exhibition space will be available on a first come, first served basis. A donation is requested from exhibitors to cover hospitality costs. For more information please contact dyan.berry@hient.co.uk

We can keep you up to date with news about P4 digital, if you would like to sign up for the mailing list please send your details todyan.berry@hient.co.uk

Information on last year’s event can be located is available from the list ofprevious conferences.

 

Edinburgh researchers develop DietPhone application to help people improve their eating habit

By Lyndsay Moss

Health Correspondent

WANT to lose weight? There’s an app for that. In all the things your mobile phone can help you with, healthy eating is now among them.

DietPhone application
Not just an apple a day: The app is also available on average mobiles

Scottish researchers have developed the DietPhone application to help make it easier to collect detailed information and monitor food intake.

They believe it will help people control their eating habits, improve their health and free up time for dieticians and doctors to see more patients.

The team behind the app, from Queen Margaret University in Edinburgh, believes it could also help people with eating disorders such as anorexia, and be useful for weight-conscious sportspeople.

Read the full article about the DietPhone application

Study: Telehealthcare Could Improve Care for Elderly With Depression

Early results from a pilot study suggest that telemedicine-based care could help improve treatment for geriatric depression, according to a presentation at the annual meeting of the National Association of Home Care and Hospice, Healthcare IT News reports.

Thomas Sheeran, a clinical psychiatrist at Rhode Island Hospital, led the study and presented its findings.

Study Methodology

The project integrated evidence-based depression care with existing telehealth programs in Florida, New York and Vermont.

Researchers started the study at the Cornell Homecare Research Project at Weill Cornell Medical College and completed the project at Rhode Island Hospital in collaboration with the University of Vermont’s Telemedicine Program.

Project Findings

When the study began, 19 patients met the full criteria for major depression with a mean depression severity score in the “markedly severe” range, Sheeran said. He added that during the follow-up to the study, mean depression severity scores were in the “mild” range.

Sheeran said that most of the elderly patients involved in the study reported that they:

  • Believed the telemedicine program had improved their care;
  • Encountered few technical difficulties with the technology;
  • Felt comfortable using the telemedicine equipment;
  • Were satisfied or very satisfied with the overall program; and
  • Would be willing to participate in the telehealth program again (Merrill, Healthcare IT News, 10/4).

Read more: http://www.ihealthbeat.org/articles/2010/10/4/study-telemedicine-could-improve-care-for-seniors-with-depression.aspx#ixzz12E4ANvdC

Government should do more to help people who use online health services

12 October 2010

The Government should do more to help people find trustworthy health websites and use online health services safely and effectively, says a new report on the ethics of ‘personalised healthcare’. The Nuffield Council on Bioethics warns that whilst online health information and services are convenient to use and extend choice, they could mislead, confuse or create unnecessary anxiety for the people who use them.

To minimise these potential harms the Council is calling on the Government to set up an accreditation scheme for online health record providers, for DNA testing and body scanning services to be better regulated, and for doctors to receive training on advising patients who use the internet to look for health information and to buy medicines online.

“The internet is now often the first port of call for people to find out more about their health. People need to know where they can get accurate health information, how to buy medicines online safely, and how any personal information about their health posted online might be used,” said Professor Christopher Hood, chair of the Working Party that produced the report.

The report also looks at direct-to-consumer personal DNA testing services that claim to predict your risk of developing diseases in future, and body scanning services which are offered to healthy people as a check-up. These services are promoted and can be booked online.

“The results of personal DNA testing and body scanning are often hard to interpret, unreliable and may cause people unnecessary anxiety,” says Professor Hood. “Better regulation is needed to ensure people are fully aware of the limitations of these services.”

The report, which considers a range of new technologies and services that are promised by their providers as offering more ‘personalised healthcare’, makes a number of recommendations for policy. In each case, the need to protect people from harm and the need to protect people’s personal information is weighed up against the need to give people freedom to make their own choices.

Health information websites

“We recommend that all websites offering health information and advice should state where the information originates and what it is based upon, who wrote it, and how the author or organisation is funded. Advertisements for medicines and products should also be clearly distinguished from other types of information,” said Professor Hood.

The Council concludes that the best websites for people to use when looking for health advice are based on high quality peer-reviewed research, from independent not-for-profit organisations, and are independently evaluated and continuously updated.

It says the NHS websites and the websites of the National Institute for Health and Clinical Excellence (NICE) generally meet these criteria.

In 2009 an Oxford Internet Survey found that in 2007 and 2009, 68% of British internet users had used the internet to look up health information.

Online pharmacies

The Council endorses Great Britain’s registration scheme for online pharmacies but recommends that the Government should make more information about it available, as people don’t always know that the scheme exists.

“Britain is leading the way when it comes to online pharmacies and patient safety, but there is nothing stopping people buying medicines from internet pharmacies based in other countries that are not regulated in the same way,” said Professor Nikolas Rose, one of the authors of the report.

“If you choose to buy medicines from a website that is not certified in the same way as registered online pharmacies in the UK, you risk buying harmful, fake or low quality products. You could also miss out on advice from doctors and pharmacists about adverse effects and interactions with other medicines you may be taking.” added Professor Rose.

The Council recommends that the UK registration scheme should be mirrored elsewhere in order to restrict the sale of medicines, including antibiotics, over the internet.

In 2008 approximately two million people in Great Britain were regularly purchasing pharmaceuticals online, both with a prescription from registered UK pharmacies and without prescriptions from other websites. A 2009 survey found that more than one in seven adults asked had bought a prescription-only medicine online without a prescription.

Online health records

Online health record services such as Google Health and Microsoft HealthVault allow people to create an account for storing information about their current and past health problems. The full versions of these services enable people to share their data with doctors and other service providers, although this is only offered in the US at present. The NHS currently intends to offer people in England an online summary of their health records through its HealthSpace website.

“These services could give people a convenient way of taking more control of their health records. However, it is paramount that people are fully aware of how their personal information is going to be stored and used before they sign up,” said Professor Hood.

The Council recommends that Governments should set up an accreditation system for online health record providers to improve transparency and standards on how personal information is stored and used. Companies should also establish systems to safeguard the confidentiality of data if they change ownership or go into administration.

Direct-to-consumer personal genetic profiling services

Direct-to-consumer personal genetic profiling services are often marketed online to healthy people as a way of finding out their risk of developing serious conditions such as diabetes, heart disease, Parkinson’s disease and some cancers, through the analysis of a DNA sample they provide.

“Commercial genetic profiling services may seem to be providing more choice to consumers, but the test results can be unreliable and difficult to interpret and they are offered to people with little or no genetic counselling or support” said Professor Rose.

“People should be aware that other than prompting obvious healthy lifestyle choices such as taking more exercise, eating a balanced diet and reducing alcohol consumption, the tests are unlikely to inform them of any specific disease risks that can be significantly changed by their behaviour.”

Currently there is no overarching system of regulation for personal genetic profiling. The Council says that claims that these services are leading to a new era of ‘personalised healthcare’ are overstated and should be treated with caution. It recommends that regulators of these services should request more evidence from companies to back up the claims they make about the predictive value of their tests.

Direct-to-consumer body scans

The report also considers direct-to-consumer CT, MRI and ultrasound body scans as a form of ‘health check-up’ for people without pre-existing symptoms.

Whole body CT scans carry serious physical risks from the radiation involved. The Council says that the commercial sale of whole body CT scans as a health check for people without prior symptoms of illness should be banned, as any potential benefits do not justify the potential harms caused by the radiation.

The scans may be hard to interpret and they often show up ‘abnormalities’ which are actually harmless, but which could lead to undue anxiety or further tests or treatments which carry risks. The report also recommends that GPs should receive specific training on giving advice to patients about direct-to-consumer body imaging services, and about making referral decisions on the basis of these tests.

Royal College of Nursing says nurses are overloaded with paperwork

Nurses bogged down by red tape

Published Date: 10 October 2010
By Lyndsay Moss
NURSES in Scotland are “overloaded” with paperwork which is stopping them caring for patients, leaders of the profession have warned. The Royal College of Nursing (RCN) said evidence suggested administrative tasks take up two-thirds of nurses’ time at work.

Royal College of Nursing logo

In a manifesto ahead of next year’s Scottish elections, the organisation said the situation could get worse with planned cuts in the number of administrative staff in the NHS.

The RCN is calling for an urgent review of paperwork so that nurses can spend more time with patients. It also called for more action to protect and encourage whistleblowers reporting workplace problems, as well as ensuring the most vulnerable groups in society were not hit hardest by public sector cutbacks.

The Scottish Government said it wanted nurses to have as much time as possible to care directly for patients. The RCN said that while some clinical paperwork was necessary, far too much non-essential admin was being done by nurses.

“Nurses of all levels and from all areas of health and social care tell us that they are overloaded with paperwork and administrative tasks,” the document says.

Read the full article HERE

BCS Health Scotland Conference 2010

The 2010 BCS Health Scotland Annual Conference was held this year in the highest of high tech arenas, the futuristic Glasgow Science Centre.
Almost 200 delegates and exhibitors shared conference presentations from speakers from all around the world.  The Conference also provided a showcase of the very best eHealth projects in Scotland including the winners of the NHS Scotland eHealth awards.
The exhibition area showcased eHealth products from over 20 vendors with a further 15 stands on the upper floor giving public sector information from organisations such as the Royal College of Surgeons of Edinburgh, the Scottish Government eHealth Directorate and the NHS Scotland National Information Services Group.
The conference started on Wednesday 22nd September with keynote speakers giving presentations on eHealth as seen from the perspective of governments in Canada, Saudi Arabia and Sweden.  There were then various presentations from speakers on such topics as ‘Telehealth in Africa’,  ‘Quality improvement in eHealth in America’ and ‘eHealth in Malaysia’.  The day closed with a champagne reception for vendors, presenters and delegates held in the main exhibition hall.
On the second day the conference focussed on topics such as the ‘Welsh Individual Health Record Infrastructure’, the ‘Scottish Patient Safety Programme’ and ‘Monitoring Access to Clinical Systems’.

The day closed with the declaration of the winners in the NHS Scotland eHealth awards for 2010.  The judges for these awards were drawn from the exceedingly knowledgeable pool of field experts in the UK.  The award winners were as follows:-

Best NHS Scotland IT Service Delivery Team which was awarded to the project lead team at NHS Greater Glasgow and Clyde team for their Strathclyde Electronic Renal Patient Record project.

Best NHS Scotland eHealth initiative supporting quality improvement of patient service or outcomes which was awarded to the NHS Ayrshire and Arran team for their project entitled ‘ eHealth systems to support clinical outcomes measurement and service improvement’.

Best NHS Scotland use of innovative IT for Patient Care which went to the team from NHS Highland with their ‘Telehealth for Long Term conditions in Argyll and Bute’ project.

At the close of an extremely busy and successful conference the Chair of the BCS Health Scotland Specialist Group, Dr Paul Woolman, was pleased to announce that the 2011 conference will be held in mid September at the Royal College of Surgeons of Edinburgh.

Edinburgh man receives a wireless bionic device to help him walk

Bionic device that got stroke victim back on his feet again

EXCLUSIVE: Helen Puttick, Health Correspondent

18 Sep 2010

When John McGregor suffered a major stroke and lost the use of his right leg, he never stopped believing he would walk again.

John McGregor is the first person in Scotland to use the pioneering new aid. Pic: Gordon Terris

After months in hospital, he could manage to walk 50 yards but suffered “drop foot” – paralysis of the muscles that lift the foot, causing the toes to drag along the ground.

Now Mr McGregor has become the first person in Scotland to be fitted with a device that raises his foot for him.

The wireless system includes a leg cuff, which straps below the knee, containing two electrodes that stimulate the muscles. A sensor placed in the shoe, underneath the heel, switches on the electrical stimulation as the leg is raised to take a step, bringing up the toes. When the foot is lowered, the sensor turns the stimulation off, allowing the foot to lie flat.

With the help of the device, called the Wireless Ness L300, Mr McGregor, originally from Paisley but now living in Edinburgh, can walk for a mile.

He said: “The L300 has given me much more independence. I can now put it on and take it off by myself and I wear it from the early morning to the late evening. My style is much more natural and my stability has greatly improved, particularly when walking uphill and on flat ground. I can actually go for 40-minute walks.”

Mr McGregor, a cosmetic surgeon, had just retired from the NHS and was still treating private patients when he suffered the stroke in July 2007.

Despite his medical background, he did not realise what had happened. He rang helpline NHS 24 and was advised to see a GP the following morning.

When he saw his doctor he could still use his legs, but the weakness increased. He remembers lying in Edinburgh’s Western General Hospital unable to feel his right-hand side, being unhappy yet surprisingly calm.

Read the full article about this bionic device HERE